Jack was diagnosed very quickly after his balance and coordination left him unable to ride his bike. Jack was always active and constantly bouncing around. He adored playing football and all of the sports. Since diagnosed Jack has rapidly declined and has lost many abilities including the use of his right side. We haven’t seen improvements with radiotherapy , unfortunately Jack continues to decline. Aside from all this he still manages to laugh most days, he loves his teddies, his cats and most importantly his food! Being in the UK, treatments are so narrow and limited so we are currently raising a funding pot with the hope that Jack is given permission to travel so we can access a clinical trial.

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