Levi was diagnosed with extremely high risk medulloblastoma in July of 2022 and had a 10 hour resection at University of Kentucky Hospital. He spent 11 days in the ICU there before he discharged home. We were fortunate enough to only have some mild left sided weakness from his resection so he was able to regain his strength and abilities fairly quickly and easier than a lot of kids we know. He received 30 rounds of proton beam radiation and stayed a total of 6.5 weeks inpatient at Cincinnati Children’s Hospital then came home to continue the battle from Kentucky Children’s Hospital and our DanceBlue oncology clinic. He has had 8 cycles of high dose chemo each consisting of a 4-5 day inpatient stay. He completed his main treatment in early June of 2023 and started on a two year clinical trial of DFMO in July to prevent relapse. 

So far, all scans have been good news, his labs have stabilized-finally and he’s doing well in school and with therapy. 

Through this tumultuous journey Levi has shown us true determination and resilience!

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