Evan was diagnosed with DIPG in July 2019 after exhibiting symptoms including such as mood changes and sleep-talking, before quickly showing more severe symptoms of loss of balance and vomiting. Following the recommendation of Evan’s pediatrician, his parents brought him to the Maine Medical Center emergency room, where he was diagnosed with DIGP, a rare and fast-growing form of brain cancer that has no effective treatment.
Evan was sweet, active, handsome, playful and funny. He loved baseball and soccer, fishing with his grandfather, Star Wars, Legos, and most of all, his big sister Avery. Throughout Evan’s life, he always spread joy to those around him, gave the best hugs, and had the biggest smile! Evan’s community really rallied around him during his treatment and he became lovingly known as “Super Evan.”
Evan lived with DIPG for almost three years and during the time he underwent three separate rounds of radiation and was on two different oral chemotherapy trials. Evan responded extremely well to treatment and really thrived for the first two and a half years. In the fall of 2021, he experienced regrowth, and despite a third round of radiation, continued to develop symptoms. Evan passed away on June 10, 2022 at home, surrounded by his family.
"The Cure Starts Now is a powerful group of parents, who have turned their pain into purpose, and are committed to seeking funding for future research. This amazing group of parents have rallied together, while in the depths of their own despair, and continue to fight for the futures of other children with DIPG. It is truly an organization unlike no other." - The Austin Family
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